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Better care in my hands: A review of how people are involved in their care

People’s right to being involved in their own care is enshrined in law in the fundamental standards of care. It is an essential part of person-centred care and can lead to better and often more cost effective outcomes.

This report is based on evidence from CQC’s national reports and inspection findings, as well as national patient surveys and a literature review. It identifies what enables people and their families to work in partnership with health and social care staff and illustrates this with practice examples from their inspection findings.

Key findings

  • Just over half of people asked say they feel definitely involved in decisions about their health care and treatment.
  • There has been little change in people’s perceptions of how well they are involved in their health or social care over the last five years.
  • Some groups of people are less involved in their care than others. They are:
    • Adults and young people with long term physical and mental health conditions.
    • People with a learning disability.
    • People over 75 years old.
  • CQC have also reported a lack of progress over the last six years in involving people in their care when they are detained under the Mental Health Act.

Recommendations

Service providers will need to ensure that the following measures are in place:

  • Personalised care plans - written with people, for people, and with their wishes and preferences clearly identified and monitored.
  • The sustained and supported involvement of families and carers in the care of their loved ones.
  • The coordination of people’s involvement in their care as they move between services - for example, through the use of health and care passports and the provision of community and peer support programmes.